Status and Funders

Our Legal Status

use MY data is an independent movement of patients, relatives and carers.  In October 2022 we established ourselves as a not for profit company limited by guarantee, allowing us to receive funding directly allowing us to manage contracts and employ staff directly.  

We are extremely grateful to present and past funders. We have never been influenced or steered by our funders – they have all given us free reign to do as we see fit with their funding, with the work of use MY data being defined by its Members and the Advisory Group, for the benefit of patients. 

The use MY data Secretariat roles are:


Our Funding

Our funding comes from different sources: 


Details of our previous funding and support for our workshops is available here.

Contact us


"the only independent patient movement in the UK focused on patient data"
use MY data is registered as a not for profit company limited by guarantee in England and Wales (14425977)

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