use MY data welcomes engagement with external bodies (organisations and individuals).

Initial engagement is usually undertaken by the Secretariat, on behalf of use MY data’s Members.

These standards will guide the Secretariat in their engagement work and are based upon the
established principles, values and position statements of use MY data, created by Members

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"the only independent patient movement in the UK focused on patient data"
use MY data is registered as a not for profit company limited by guarantee in England and Wales (14425977)

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