The only independent movement of patients, relatives and carers in the UK focused on the use of patient data to save lives and improve outcomes Find out more and join us
What we do
|We bring the patient voice to discussions about patient data
|We campaign and influence on a range of issues around using patient data
|We have a clear set of data-principles which we encourage others to follow
|We act as critical friends to organisations which hold patient data
What we don't do
|We do not hold patient data
|We do not endorse specific organisations
|We do not stray outside the patient data field
Patient data news
use MY data is a movement of patients, carers and relatives
use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.
use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.
use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.