How should we think about clinical data ownership?

(Published to the use MY data site on 2020-01-30)

Angela Ballantyne has published an article examining whether individuals own their own healthcare data. I argue in favour of a broader relational account of ownership, and suggest that the solution to potential data harms involves strategies to reconnect patients with their data and engage them in debates and decision-making about secondary uses. Transparency is a necessary platform for public engagement and should be prioritised across the clinical data ecosystem. The article entitled How should we think about clinical data ownership? was published on 7 January and is free to access.

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