Understanding Patient Data Update

(Published to the use MY data site on 2019-12-13)

Understanding Patient Data has published an update blog. Alongside providing an update on recent activities and the growing team, the blog highlights three key areas that the 2020 strategy will focus on:

Growing our partnerships to support the people best placed to have conversations about how patient data is used (including health professionals, charities and patient groups)

Ensuring the views of patients, health professionals and the public are heard by the people who set national policy and make decisions about how patient data is managed and accessed

Understanding and promoting the views of diverse groups of people, to prevent the concerns of underrepresented groups being neglected in decisions how patient data is used.

The blog is available to read here - https://understandingpatientdata.org.uk/news/hello-again

Produced by use MY data

Further details from contact@usemydata.org.uk

Please use the patient data citation:
"This work uses data provided by patients and collected by the NHS as part of their care and support"

The patient data citation was conceived and developed by the patients and carers in the use MY data patient movement. It has been widely adopted by data and research organisations, and recommended for adoption by the major research funders in the UK.

About use MY data

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.


Our vision

Our vision is of every patient willingly giving their data to help others, knowing that effective safeguards to maintain the confidentiality and anonymity of their data are applied consistently, transparently and rigorously.