The Swallows Carers Survey- Shaping the future

(Published to the use MY data site on 2019-06-26)

The Swallows Head and Neck Cancer Charity are conducting a National survey on Carers of Cancer patients. The survey is for ALL types of cancers and its aim is to understand what support is given, what support is needed, how support can be reached and what impact being a cancer patient carer can have on carers as they go through diagnosis, treatment and beyond with their patients.

The survey is online and will only take approximately 15 mins. You can complete the survey here .

The Swallows hopes that by completing this survey you will help give a voice to carers across the UK and help implement change for the future of cancer carers, please share the link on social media to help us understand the full impact for carers.

If you have any queries please contact Wendy Brown at

Produced by use MY data

Further details from

Please use the patient data citation:
"This work uses data provided by patients and collected by the NHS as part of their care and support"

The patient data citation was conceived and developed by the patients and carers in the use MY data patient movement. It has been widely adopted by data and research organisations, and recommended for adoption by the major research funders in the UK.

About use MY data

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.


Our vision

Our vision is of every patient willingly giving their data to help others, knowing that effective safeguards to maintain the confidentiality and anonymity of their data are applied consistently, transparently and rigorously.