Some of the organisations which use MY data members feedback to:

100,000 Genome Project

Academic and patient research groups - various

Academic Health Science Network for the North West Coast

Aintree Lung Support Group

Barnet Healthwatch Primary Care Group

Beat Kidney Stones

Bloodwise

Bowel Cancer Intelligence UK (BCI-UK)

Brainstrust

Brighton Hove Cancer Communications Group

Bromfield Hospital

Broomfield Hospital patient cancer group

Cancer Registry

Cancer Research UK

Cancer Research UK patient group

Cancer support groups

Cancer Survivors Network

Carers together

CCL Association (Chronic Lymphocytic Leukaemia)

Centre for Obesity Research

Childhood Cancer Parents Alliance (CCPA)

Chronic Lymphocytic Leukaemia Support Association

Chronic Myeloid Leukaemia (CML) Cancer Support Group

Clinical Commissioning Group

Clinical Informatics Research Group, Dept. of Medicine, University of Cambridge

Clinical Trials Dispensary, Addenbrookes

Community Voice

Connected Health Cities

Coventry, Warwickshire & Worcester local cancer group

Disability Forum

Early Diagnosis Group, Department of Primary Care, Cambridge University

East of England Cancer Alliance Patient Advisory Board

Empower Data4Health

Ethics & Governance office, Wellcome Trust Sanger Institute

Glasgow Biorepository

Glasgow Biorepository management committee

GP Patient Participation Groups

Group concerned with Early Phase clinical trials and the use of patient data including genomics in these

Guise & Dolls Head & Neck Cancer Support Group

Guy's & St Thomas NHS Foundation Trust

Harrogate Health Care Trust

Healthwatch Central West London

Healthwatch volunteers

HQIP (Healthcare Quality Improvement Partnership) Service User Network

I Had Cancer

Independent Cancer Patients' Voice

Innovation Agency North West Coast

Institute of Psychiatry, Psychology & Neuroscience (IoPPN), King's College London

INVOLVE

Janssen

King's College London

Leeds Centre for Personalised Medicine & Health

Leeds Institute for Data Analytics

Liverpool Health Lung Project

Local Cancer Alliance

Local cancer groups across West Midlands and local Health Watch

Local groups, friends, relatives and neighbours

Local hospital Cancer Management Board

Locality Patient Participation Groups

London Transferring Cancer Services (NHSE) - patient advisory group

Lymphoma Support for You

Macmillan Cancer Support

Macmillan Cancer Support patient group

Macmillan Community

Macmillan Geriatric Oncology Expert Reference Group

Macmillan volunteers LASER (London, Anglia and South East England)

Medicines Discovery Catapult

Mid Essex Cancer User Group

National Cancer Research Institute (NCRI) patient liaison group

National Cancer Research Institute / Cancer Research UK Consumer Forums

National Coalition for Cancer Survivorship (USA)

National Data Group

National Institute for Health Research (NIHR)

NCRI Cellular Molecular Pathology Initiative (NCRI CM-Path)

NCRI Clinical and Translational Radiotherapy Research Working Group (NCRI CTRad)

NCRI Consumer Forum

NCRI Consumer Forum / Brain Clinical Study Group

NHS cancer patient group

NHS Digital Programme teams (Information Representation Service and WiFi)

NHS England / Public Health England workshops, as appropriate

NHS Patient & Public Involvement representative & trainer

NHS PPF

NI Cancer Consumer Forum

NIHR (National Institute for Health Research) Biomedical Research Centre, University College London

North Derbyshire Cancer Action Group

Northern Ireland Cancer Research Consumer Forum

Ovacome

Pancreatic Cancer UK

Patient & Public Involvement Advisory Group (PPIAG), Biomedical Research Centre,

Patient and carer research review panel, National Research Ethics Centre (NREC) - London - Hampstead

Patient Educator Programme, Kings College London

Patient Participation Group

Patient research advisory groups with which I am involved. Shared generally locally to home via parish nurse project. Also to the health professionals from research with which I am involved.

Patient Voice & Insight Group

Patients in research groups at local and regional trusts and universities including Research Design Service Yorkshire and the Humber (RDSYH), as well as other research involvements and contacts namely; GP Patient Participation Groups and Clinical Commissioning Group networks

PIER (Patients involved Enhancing Research) - HSC (health & social care) Research and Development

PPI panel at Guy's Hospital

Public Health England

Public Health England Screening programmes

Quora.com

Research Design Service Yorkshire & the Humber, PPI Research Forum

Royal College of Midwives (information gained will be used to review the Code of Practice for storage of residual blood spots - NHS Newborn Blood Sport Screening Programme)

Royal College of Radiologists

Royal Marsden / Institute of Cancer Research

Screening Quality Assurance Service London, London + national data group

SELCRP (South East London Cancer Research Panel - PPI panel)

Several patient research advisory groups with which I am involved. Shared generally in our villages via parish nurse project. Also to the health professionals from research with which I am involved.

Shine Cancer Support

South East London Consumer Research Panel for Cancer, Biomedical Research Centre,

Speak Easy

STP (Sustainability and Transformation Partnerships) Service User Advisory Group

Sussex Cancer Action Group

Sussex Cancer Patient Partnership Group

The Brain Tumour Charity

The Farr Institute

The Royal Marsden Biomedical Research Centre, Clinical Research Facility (CRF)

The Royal National Orthopaedic Hospital's Patient Group

Trials Unit

Understanding Patient Data

University

University College London (UCL) / UCL BioMed Central cancer

University College London Hospitals (UCLH) Cancer Patient and Public Advisory Group

University of Cambridge PC Research PPI

West Midlands Strategic Clinical Network (WMSCN) Cancer Patients/Carers Voice / Insight Group

WH Cancer Network PV + I group

WMSCN (West Midlands Strategic Clinical Network) for patients/carers

Work colleagues

Yorkshire and Humberside Consumer Research Panel

Yorkshire Cancer Network Forum

Yorkshire Cancer Patient Forum