Understanding Patient Data have published new research on what the public thinks about businesses and organisations using data held by the NHS.
The research shows that members of the public support the use of NHS held health data by third parties, only when there is benefit to patients across the UK, rather than for short term financial gain for the NHS. Benefits to patients includes things like improving disease detection or developing new medicines and treatments.
Dr. Natalie Banner, who leads Understanding Patient Data said This
research shows that people are excited by the idea that NHS held data could
be used to improve care for patients, and help everyone live longer,
healthier lives. At the same time, this data is about people, so the public
should have a say in how its used. The Government must act now or risk
damaging the trust people have in the NHS.
Produced by use MY data
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The patient data citation was conceived and developed by the patients and carers in the use MY data patient movement. It has been widely adopted by data and research organisations, and recommended for adoption by the major research funders in the UK.
use MY data is a movement of patients, carers and relatives
use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.
use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.
use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.
Our vision
Our vision is of every patient willingly giving their data to help others, knowing that effective safeguards to maintain the confidentiality and anonymity of their data are applied consistently, transparently and rigorously.
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