Our mission

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.

Contacting use MY data

As a movement, use MY data is its members.

We are a non-hierarchical organisation. We do not have headquarters, or an office base.  Therefore, we do not have a postal address or dedicated telephone number.

We do have a small Secretariat, comprising a Coordinator, Expert Data Adviser and Events & Web Manager.  The Secretariat works closely with the Advisory Group, which comprises a small pool of use MY data members.

If you have any questions, comments or enquiries, please email coordinator@useMYdata.org.uk 

You can also contact us via Twitter @useMYdata