Promote individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes, recognising the patient contribution
Highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all
Understand the uses of data in healthcare delivery, improvement and research, aimed at improving patient decision making, treatment and experience
"I am interested in people being able to benefit from the use of my data and other relevant data, because it helps in making plans, improving the system and checking on progress of what is being given to us - the treatment we're getting"
Patient advocate, use MY data
"Knowledgeable patients are already proving they can play a pivotal role.
Take the great work of the movement that is 'use MY data',
harnessing the patient voice to build confidence in the use of data for improvements."
Health Service Journal, Oct 2017